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ABOUT
OUR GROUP
The group formed in 1994 and we became a
Registered Charity in 2004, we have a dedicated Committee in the form of
Chair, Vice Chair, Treasurer, Membership Secretary, Awareness
Co-ordinator, Group Secretary, Website Co-ordinator, News Letter Editor,
Library Co-ordinator, Catering Co-ordinator who make up the Management
Committee with committee helpers, we are all unpaid volunteers.
Our policy is to have no discrimination
and provide equal opportunities for all, by our constitution we are not
permitted to have members under the age of 18, any person(s) under the
age of 18 will be welcome at all our meetings and entitled to our group
news letter and library service.
The founder of the Group Jo Gallagher,
who was diagnosed in her mid teens, started the group from home with a
small number of diagnosed people attending gatherings. Jo made efforts
to promote the awareness of fibromyalgia and appeared on the local TV
Channel for the Community Service Announcement, since then the group
have grown to its present size of around 300 members. A number of years
after 1994 the group have grew to a size to be able to form a fully
functioning committee from volunteer members, Jo then handed the group
over to them in order for her to persue personal ambitions, today she
remains the Group Honorary President.
The group provide a library for members,
a website, a quarterly news letter, monthly meetings and a help line.
Our meetings are informal and relaxed and you will be welcomed by our
door registration co-ordinator who will happily hand you over to the
"Greeters Table" if it is your first meeting.
We provide information and support in a
friendly, safe and positive environment, we offer you the opportunity to
meet people who have the condition themselves and share with each other
knowledge, information, comradeship and the opportunity to support one
another.
When you are first diagnosed if you do
not receive adequate information you may experience confusion,
frustration and isolation, by joining a support you have taken the first
step to achieving greater awareness and understanding of the condition,
why be alone? Our library offers excellent fibromyalgia books written by
some of the most eminent fibromyalgia specialists, educating yourself
about the condition helps you to educate your family and friends, this
helps them acknowledge what has happened to you and how you may feel on
a daily basis.
Our group offer the chance to be involved
in the cause, to help make a difference by joining the committee and
working with the management committee, to change the perceived
perception of fibromyalgia.
Our meetings are held on the second
Saturday of each month, except August when we do not have a meeting, any
changes to meeting dates and times are advertised on our website and if
the time schedule permits, in our quarterly news letter. We have guest
speakers throughout the year, symptom solution swaps, July and Christmas
Socials, there is social time at our meetings for informal chat and
refreshments.
We have an Awareness Agenda that is
planned by the Committee and aimed at the community, the patient and the
professionals, all our information packs are provided free and produced
by the Committee.
To help us run the Group we have a
membership fee, this helps with payment for guest speakers, stationary
and printing costs, information packs etc. The Group participate in
local fete's and shows throughout the summer to raise funds to help us
with our awareness raising. Over the years we have been very fortunate
to have the support of local companies with our aims and objectives.
Our meeting dates and speakers may be
located under "Diary Dates" our Mission Statement may be viewed on our
website as can "What Our Group Does", in the History Page you may read
about our Awareness Conferences held at the City Hospital and our
Awareness Raising Agenda.
The Group Committee
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